The Good and The Bad

I will start with the bad since I want to end on a good note.

Peyton is still not eating great.  We got excited yesterday because she took some bottle and some applesauce, but this was short lived progress.  She wouldn’t eat anything the rest of the day and we had to feed her thru the tube.  Her seizures are acting up today and who knows why.  I just know I hate seizures and they are mean and stupid.  So she isn’t eating today either, but we will keep on trying.   I don’t know what all this means long term, but I don’t want to think in the long term right now….I will stick with the short term thank you very much.

The good news….which is bittersweet since she is having seizures again today, but let’s be positive, shall we?

Peyton went ONE WHOLE WEEK with no seizures.  This is the longest stretch since they started.  We are thrilled with this.  This is progress and this is the diet.  The ketogenic diet is truly wonderful and as big of a pain as it can be, I don’t want to imagine this past year without it!!!

Developmentally, Peyton hasn’t made huge strides, but she has made small strides.  She still can’t hold her head up, but she tries.  6 months ago she didn’t try.  She will touch the IPad when I bring up the baby apps.  6 months ago, she wouldn’t touch it.  She shows interest in the world around her.  6 months ago she didn’t.  I have to put all this down on paper sometimes so I can remind myself that she is making progress. 

I guess I am in a bit of a funk today.   Life with seizures is a roller coaster.  I wish our family could step off the roller coaster.  I don’t like this roller coaster. 

I said I wanted to end on a positive note, but I guess I didn’t.  Seizures have that effect.