See No, Hear No, Speak No.....SEIZURES.

I shouldn’t say it, I shouldn’t talk about it and I shouldn’t even go there, BUT, Peyton has gone 16 days without a seizure!!!  Omgoodness!!!  This is her new record.  She is still holding her head up….more wobbly on some days, but we are noticing big differences in her strength and her ability to move.  I am convinced that any day we are going to see her roll over.    She is giving us lots of half smiles these days.  We are expecting BIG smiles soon!  We are thanking God for all our Peyton blessings.

Lots of action in our lives these days.  Blake is playing travel basketball and last weekend his 3^rd grade team won the YBOA State Basketball Championship!!!  Go WNC Altitude!!

Tired 

guys - This is after we got home from the State Playoffs.

Mackenzie and Blake are in the last days of the school year and finishing up their EOG’s (which I hate and don’t even get me started!!!) 

Looking forward to summer time and enjoying time with the kids.  Time goes by so fast and we get so busy, we forget to just enjoy each other.

Kisses from Sissy are the BEST!!!!

Sleeping Beauties

Two of her favorite people on the planet sharing the feeding responsibilities:-)

To Infinity and Beyond!

Prayer

I would like to ask all those who read our blog to pray for another child that I have heard about thru a mutual contact.  Her name is Emma and she is 4 years old.  She was born with severe neurological issues and has not only survived (against all odds) but flourished developmentally beyond anyone’s wildest expectations.  I don’t know this family personally, but I know they have been tireless and faithful in their efforts to help Emma and to use any and all resources that are available for her – stories like Emma’s truly inspire me.  Her parents are true heroes to parents like me who have started this journey more recently. 

Emma is having surgery today or tomorrow and the next 10 days will be a tough road for little Emma and her family.  Please keep this precious child and her family in your constant prayers and please share this request with your own circles, churches and family.  I will be receiving updates on how she’s doing and will post them. 

Thank you Peyton’s friends for adding another sweet child to your prayers!!!

Patience is a Virtue

Peyton is starting to gain some head control.  This is a long time coming!  We have almost completed one more wean of a seizure med so now she is only on Phenobarbital and the Ketogenic Diet for seizure control.  She takes several supplements, but this is vastly different from where we were a year ago with her meds.  At one point, she was on five different seizure meds.  So thankful those days are behind us!

Seizures are sporadic with her.  She has had two or three in the past three weeks.  The seizures really are getting better and better and as the seizures sloooooowwwwwllyyyyyyy decrease, her development takes teeny tiny strides.  She is using her arms and legs so much more and doing so well with all her therapies.

 

Patience is such a vital necessity when working with special needs of any kind, whether your child has a speech impediment, learning disability or more serious delays.  Nothing happens overnight and some days it’s so hard to press on when you feel like nothing is being accomplished, BUT when you start to gain a tiny bit of ground or your child FINALLY does something that comes so easy for others, there is just no way to describe the joy in that.  All the hours of hard work and implementing all the things we have learned from Peyton’s therapists is finally starting to pay off.  When I see her bobbling that sweet little head of hers and showing us that she can really hold it up, I feel like she has won an Olympic event.  I can’t imagine feeling any prouder. 

Lots of other good things going on…….Peyton’s nursing aide has been a fabulous addition to the Peyton Team and we are so blessed to have her…….Summer is coming and the kids have a few weeks of school left – they are excited and ready for a break……we took a vacation for Spring Break and went to the beach and had a wonderful time, Peyton loved the ocean breeze!

Posting some pics and good weekend wishes for everyone!!!!

Daddy bought her the shades!

Nice nap in the shade at the beach.

The kid cart became a nice clothes rack at the outlets at the beach.  Peyton didn't mind, she just slept thru the whole shopping excursion!  

Check her out holding her head up - not the best pic, but you get the idea!!