Our Amazing Girl: Patience is a Virtue

Peyton is starting to gain some head control. This is a long time coming! We have almost completed one more wean of a seizure med so now she is only on Phenobarbital and the Ketogenic Diet for seizure control. She takes several supplements, but this is vastly different from where we were a year ago with her meds. At one point, she was on five different seizure meds. So thankful those days are behind us!

Seizures are sporadic with her. She has had two or three in the past three weeks. The seizures really are getting better and better and as the seizures sloooooowwwwwllyyyyyyy decrease, her development takes teeny tiny strides. She is using her arms and legs so much more and doing so well with all her therapies.

Patience is such a vital necessity when working with special needs of any kind, whether your child has a speech impediment, learning disability or more serious delays. Nothing happens overnight and some days it’s so hard to press on when you feel like nothing is being accomplished, BUT when you start to gain a tiny bit of ground or your child FINALLY does something that comes so easy for others, there is just no way to describe the joy in that. All the hours of hard work and implementing all the things we have learned from Peyton’s therapists is finally starting to pay off. When I see her bobbling that sweet little head of hers and showing us that she can really hold it up, I feel like she has won an Olympic event. I can’t imagine feeling any prouder.

Lots of other good things going on…….Peyton’s nursing aide has been a fabulous addition to the Peyton Team and we are so blessed to have her…….Summer is coming and the kids have a few weeks of school left – they are excited and ready for a break……we took a vacation for Spring Break and went to the beach and had a wonderful time, Peyton loved the ocean breeze!

Posting some pics and good weekend wishes for everyone!!!!