AFO's

Peyton got her AFO’s today!!!  She did so well when we had them fitted on her this morning.  These are going to help her so much and give her some necessary stability for standing and eventually walking.  They are very stylish too with the pretty butterflies!

I had posted previously about the movements she was having in her sleep and her neurologist having us increase her dose of B-6 by 150 mg.  This actually did work for a few days, but last night the weird movements came back again and she is having them today, too.  So, Ed got a video of it and we emailed it to her neurologist.  He does feel the movements are suspicious for infantile spasms but the only way to really tell will be with an EEG.  We will increase her B-6 dose again and see if that helps and then in another week or so, if they continue, we will take her to Chapel Hill so they can catch the movements on an EEG.  We are praying they resolve with this next increase of B-6.

In other news, she continues to be her cute self and is just doing great with all her therapies.  She enjoys playing with her toys and tends to get bored when there is not a person or toy around to entertain her.  I tell ya, we are so happy to see her reacting to toys and to us that we will act like fools and cut cartwheels and stand on our heads just to see her enjoy being entertained.  The diet is going well and she got to eat eggs this week.  She didn’t much care for the texture but seemed to like the taste.  We are working our way away from pureed foods and she seems to be enjoying the more chunky stuff!!

This is Peyton being entertained by her Mimi (who will also do cartwheels and headstands to entertain her!!) Notice her head and trunk control - Peyton's, not Mimi's:-)

Sweet Sleepy Baby

Please keep Peyton in your prayers and pray these movements we are seeing are not those awful spasms and that they will go away.