I have posted recently about the movements Peyton has been making that are suspicious for Infantile Spasms. We have slowly increased her Vitamin B-6 to 200 mg twice daily to see if that would help but it really hasn't so her neurologist has suggested she have a 24 hour Video EEG to determine if this is what she is having. She will be admitted to the hospital for it and we should get a call tomorrow to head that way when a bed becomes available.
Sometimes our life feels like a Tug-of-War. Mackenzie (our sweet 11 year old) starts Middle School tomorrow. This is such an important time for her and I want to be there for every single second and I will get to drop her off in the morning but I will probably be gone already by the time she gets home and the only way to hear about it will be on the phone. I want to see her sweet face while she tells me about it. I also want to be able to hear about big 4th grader Blake's first day (although it will be like pulling teeth to get him to talk much about it!!) I feel so conflicted. Peyton's health, of course, is of vital importance and it is urgent we have this EEG done so we know if she is having Infantile Spasms again, but I'm so frustrated that I can't be there for the other two kids. I feel like we juggle juggle juggle (as all parents do!) but then the juggling act comes to a screeching halt while we deal with yet another health crisis. We are blessed to have amazing family & friends who jump in at a moment's notice to help out, but I can't help but feel like my failure to juggle it all is an indication of my failure as Super Mom. Thank goodness this sub par Super Mom has Super Dad, Super Grandparents, Super Nurses and Super Friends to help out with the juggling act. It TRULY takes a village.
Please keep Peyton in your prayers as we travel to Chapel Hill for the Video EEG. This will be her first EEG in over a year and I'm not sure she will be as compliant as she has been in the past when having these done. Should be interesting.
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