Peyton
has been cruising along, doing new things, smiling more, and is just so much
more content than we have ever seen her and I guess the Seizure Monster just
couldn’t stand it and thought he would just show us what he can do and how
devastating he can be to a 2 year old’s development. The seizure monster makes me bitter and
angry. I don’t understand it. I don’t understand the cruelty of it
all. It literally brings us to our knees
to have to watch her have seizure after seizure after seizure. Yesterday was actually a good day and she didn’t
have any seizures till the evening and they were few and short, but today she
woke up and they started with a vengeance.
The medication increase will take 6 weeks to complete so we just pray we
see positive things after we complete the increase. Her ketones were moderate on Monday so maybe
this is playing a role?? It’s all one
big guessing game and it just makes us crazy.
We
just want her to feel good and be happy and know how much we love her, but the
seizures seem to rob her of all of that.
It’s not fair. I know that life
isn’t fair, but it’s especially cruel when it’s unfair to a child…..a child
that hasn’t had a chance to giggle, play and just feel good.
Can
you tell it’s a bad day?? I’m clearly in
pity party mode so I am going to go regroup and refocus and be back later with
a better attitude.
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